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Charity Tandem Skydive with Little Hearts
Matter
   
Little Hearts Matter works with families where a single ventricle heart
condition has been diagnosed.
This condition is the severest of all heart conditions; twenty years
ago most of these children would have died within days of being born.
Thankfully, today, there is life-saving surgery available for many of these
children, however, they will not all survive the complex operations required.
Those that do survive will never have a fully working heart so need to learn to
live with the life limiting condition.
For those who are not familiar with Little Hearts Matter, they are the
national organisation that supports these children and their families as they
learn to face the challenges that their condition creates. They offer a wide
range of services that supports the child (and their family) along their journey
to independence. They also offer bereavement support to the families who sadly
loose a child to the condition.
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What do the families say:-
“We will never forget the first event we attended; Matthew was only 3 weeks old
was still critically ill in intensive care at the time. Attending the event
allowed us the chance for the first time to see there might be a future for him,
as we talked to other parents who understood what we were going through.”
“Little Hearts Matter has become a lifeline to me and my 4 year old son Samuel.
We would be lost without them.”
“LHM literally saved us and my little boy. I had the wrong information from my
foetal cardiac specialist on the condition and success rates. I'm so grateful to
LHM.”
“I received my diagnosis whilst pregnant and came to one of your Family Days when I was seven months pregnant.
I had to hold back my tears, tears of joy and hope, as I saw ten year old
children with the same condition as my unborn baby playing happily together., I
started to see a future from that day on, and whilst there are many precarious
obstacles along the way, knowing Little Hearts Matter is here to support us,
brings huge relief to us.”
The condition isn’t correctable and sadly is life limiting, we help families
lead as normal a life is as possible, helping children along their journey to
independence.
For any child the transition to adulthood is extremely stressful, but for these
children and their parents it is almost unimaginable at how, scared, confused
and lonely the children and their parents are. They do not have people round the
corner experiencing the same life threatening journey and for many our annual
Families and Friends weekend is the only occasion they get to meet up with
similar children and parents to share their anxieties and generally just feel
less alone and isolated. A few tears but many hours of laughter are shared
between the families
Please consider supporting Little Hearts Matter
www.lhm.org.uk
Tel: 0121 455 8982 |
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